So, since I last posted I had my blood sent to Fry labs in Arizona. Doc had thought I had Bartonella this whole time, along with Lyme.
Positive antibodies for Anaplasma. Perhaps this explains my low WBC, anemia (low RBC) not iron-deficient, low platelets, which are apparently the usual findings in blood work for someone with Ehrlichia or Anaplasma.
Substantial biofilm communities were also found in my blood. Finally getting some answers or a direction on where to go with treatment is a great feeling.
No new bloodwork since June or July due to lack of insurance, etc.
Food allergy test results back show a ridiculous amount of allergies. Kind of surprised. However, not many of the allergies are from things that I frequently (or ever) eat. As suspected, I am VERY allergic to coffee and still showing high reactivity to YEAST. What was surprising are my allergies to things like cauliflower, watermelon, all citrus fruits, carrots, squash...
Brief stint of Nystatin in December. Will continue to take Nystatin as needed for yeast/fungal issues.
Introduced Doxycycline in December. I really cannot tolerate these antibiotics! In terms of nausea. Seriously. I don't vomit while on the abx but the nausea is so severe even at the low dose of 100mg.
Next step is to introduce Malarone, an anti-protozoal/anti-malarial drug. I've been on Plaquenil for so long (about 4 years) and do believe it helped me. However, I would love to give something else a try seeing as how I'm still battling these bugs even after being on the Plaquenil for so long.
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I last saw the doctor in December. Through my own research I started Artemisinin and Lumbrokinase and Nattokinase (biofilm busters) in January. Cymbalta dosage has also been reduced to 40mg. I'm alternating the Lumbrokinase and Nattokinase every other day. Have yet to work my way up to my daily goal of 500mg of Artemisinin. I am rotating that out every 7 days to avoid resistance. I've been on pain meds the past few months, so as far as any herxing goes, it would be hard to tell. Though, lately, I have been having bouts of low-grade fevers and hot/cold flashes. Could be some herxing there.
I don't think I gave Flagyl a fair trial this past fall, so I've restarted it. Starting at 250mg a day, would like to quickly work up to 500mg a day. Since my desire to take Flagyl was the reason for quitting the Plaquenil... I need to give it another go.
As for clean-up agents, I've added chlorella tablets as well as vitamin C powder (1,000mg/day). Still continuing with D-Ribose powder for muscle pain. Switched multivitamin from New Chapter to Country Life.
Come with me and you'll be... in a world of pure debilitation... (to the tune of Willy Wonka's Pure Imagination song)
Showing posts with label tetracycline. Show all posts
Showing posts with label tetracycline. Show all posts
Monday, February 25, 2013
It's been awhile
Labels:
Anaplasma,
antibiotic,
Artemisinin,
autoimmune,
autoimmunity,
Fry labs,
herx,
herxheimer,
Lumbrokinase,
lyme,
lyme disease,
Nattokinase,
Nystatin,
plaquenil,
sjogren's syndrome,
sjogrens syndrome,
tetracycline
Saturday, May 12, 2012
Ended medrol pack - increased Minocin
Well the Medrol pack is now finished and I'm on 2.5mg prednisone, hopefully tapering to none by the end of next week. The rash on my shin is now gone, but I still have some small spots on my upper back.
Yesterday I increased my minocin dosage from 100mg to my normal 200mg per day. I was taking 200mg of the generic stuff from December 2011 until the beginning of April, then switched over to brand name and it seems to be stronger so I lowered the dose to 100mg. Not sure if I'm ready to handle the 200mg yet, especially since I'm still on a small amount of prednisone, but we'll see. I'm a bit anxious to try out the Zithromax to see if it has any effect, but I think it would be best to wait a little bit and give the brand name minocin a chance to do its thang.
As far as today goes, I've noticed a significant increase in muscle pain and sacroiliac joint soreness along with that damn left knee pain that is almost a constant nowadays (as it was in pre-plaquenil days). 200mg ibuprofen earlier in the day didn't do a whole lot for the pain.
Yesterday I increased my minocin dosage from 100mg to my normal 200mg per day. I was taking 200mg of the generic stuff from December 2011 until the beginning of April, then switched over to brand name and it seems to be stronger so I lowered the dose to 100mg. Not sure if I'm ready to handle the 200mg yet, especially since I'm still on a small amount of prednisone, but we'll see. I'm a bit anxious to try out the Zithromax to see if it has any effect, but I think it would be best to wait a little bit and give the brand name minocin a chance to do its thang.
As far as today goes, I've noticed a significant increase in muscle pain and sacroiliac joint soreness along with that damn left knee pain that is almost a constant nowadays (as it was in pre-plaquenil days). 200mg ibuprofen earlier in the day didn't do a whole lot for the pain.
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