Saturday, November 30, 2013

Symptoms over the years...

I thought it might be interesting to share with you all the symptoms I have had over the years. I will attempt to list them in chronological order, just for funsies,to see how my disease(s) has progressed.


Symptoms

Cold hands and feet

Fatigue (last year or so of college I was missing classes so I could sleep)

Swollen lymph nodes (mostly in neck, but groin area too)

Lymph node biopsy in 2007 – negative for cancer (people with Sjogren's Syndrome are at a higher risk for getting lymphoma, very important to get any swollen nodes checked out)

Sleeping 12-14 hours a night, continues to this day, requiring 2 hour nap during daytime 



Ringing in ears, buzzing


Trouble finding the words I want to say, word recall/retrieval


Short term memory problems


Cold hands and feet, Raynaud’s diagnosis/poor circulation


Muscle pain and tightness

Fibromyalgia


Tingling on left side of face, near nose


Tingling on left side of scalp


Joint pain, NOT bilateral (which is usually an indicator of Rheum. Arthritis)


Exhaustion/fatigue


Hair loss


Floaters in eyes, blurry sight, eyes sensitive to light

Dx'ed with Hypermobility (joints bend too far, collagen/cartilage problems)


Dx'ed with early-onset Osteoarthritis in knees, at age 24!


2009 – diagnosed with Sjogren’s syndrome


Heart palpitations, Mitral Valve Prolapse (MVP) diagnosis – 2009


Macrocytic anemia (NOT due to lack of Iron in diet)


Hives all over body, April 2009


Periodic itchy rashes all over body, requiring prednisone multiple times


Dec. 2010 – MRA and MRI negative. Continue to be at a loss (haha, nice pun!) for word retrieval issues, along with concentration and cognitive problems. 


Reduced ability to concentrate, diagnosed with adult onset ADD, though I've always gotten good grades in school



Abdominal pain on left side

Lower left quadrant intestinal pain


Decrease in appetite, hard to get over 1,000 calories/day


Multiple food allergies, currently on very restricted diet (gluten free, dairy free, soy free, blah blah blah)



May 2011 – 2nd surgery for ovarian cysts/Endometriosis


Sensitivity to light and sounds (need to wear ear plugs if there are dishes being put away or blenders being used)


Sensitivity to smells (headaches, nauseous from smells of cleaning supplies)



Air “hunger” symptoms start after moving to Chicago in 2011, continue to present day


Major depression and anxiety


2011 – diagnosed with Hypothyroidism (Hashimoto’s autoimmune)



Sharp abdominal pain on sneezing or coughing, probably due to persistent ovarian cysts


2011 - saw new doc in Chicago, bloodwork shows Mycoplasma infection and high Strep titers, Igenex testing, started antibiotic therapy Dec.2011

2012 – blood smears via Dr. Fry labs shows Protomyxzoa rheumatica infection with substantial amounts of Biofilm, Anaplasma antibodies detected as well


recent symptoms, started summer/fall 2013
Bladder irritability, painful urination (NOT due to a UTI)